tag:blogger.com,1999:blog-9152579134032614306.post3176578647669570571..comments2023-10-03T04:42:37.883-08:00Comments on Fibromyalgia and the Tiger within: still searching for peace with fmshobbzhttp://www.blogger.com/profile/01329630388338314898noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-9152579134032614306.post-8351672948565312052012-06-07T13:46:06.516-08:002012-06-07T13:46:06.516-08:00Well, I don't actually consider this is likely...Well, I don't actually consider this is likely to have success.<br /><a href="http://www.thejoecompany.com/pc-4454-38-levis-light-blue-denim-shirt.aspx" rel="nofollow">here</a> | <a href="http://www.maharishiamritkalash.com/pc-1620-1-compatible-xerox-016197800-high-capacity-magenta-laser-toner-cartridge-for-the-phaser-7300.aspx" rel="nofollow">here</a> | <a href="http://www.maharishiamritkalash.com/pc-23-1-compatible-alternative-for-brother-tze131-black-on-clear-tape-for-ptouch-047-in-x-262-ft-12-mm-x-8-m.aspx" rel="nofollow">Compatible Alternative for Brother TZe131 Black on Clear Tape for P-Touch - 0.47 in x 26.2 ft (12 mm x 8 m)</a>Gylesnoreply@blogger.comtag:blogger.com,1999:blog-9152579134032614306.post-87796710410727142362009-01-24T12:50:00.000-09:002009-01-24T12:50:00.000-09:00I haven't dropped by in awhile because of my house...I haven't dropped by in awhile because of my house being toxic due to new carpets. I can't really be at the computer for long, but I wanted to comment on your sleep study and the weight loss surgery. I have FM and have one a sleep study. I had really bad insomnia for 5 months. I was surprised as well when they said that I slept overnight in the lab. here's the deal: people with FM have weird brain wave patterns at night: you're asleep but you have Alpha-wave intrusions into the deep sleep Delta stage. This means that you're rarely getting the kind of non-dreaming, deep sleep where your muscles are totally flaccid. This is why FM muscle pain is so bad. I don't know how we fix it. Some people can take low dose tricyclic antidepressants at night to deepen their sleep; however, many people (including me) find that these drugs make you too fatigued to function during the day. Maybe your doc could tell you what your brain waves were like and maybe he/she will have a suggestion for you. But you're not crazy!!!<BR/><BR/>As for the big surgery, I would second the Prof's opinion: FM makes it hard to recover well from surgery. I know it's a tough cycle this pain/weight thing... but I do worry about FM being exacerbated by surgery. Just my opinion.<BR/><BR/>And, your posts are not rants. This is life with FM and your writing helps connect us and inform us and maybe it helps you get things out. That's all good.<BR/><BR/>Take care...D Phoenixhttps://www.blogger.com/profile/12525527107082626371noreply@blogger.comtag:blogger.com,1999:blog-9152579134032614306.post-44942497773087709582009-01-13T18:54:00.000-09:002009-01-13T18:54:00.000-09:00I just found your blog and I hope you update how y...I just found your blog and I hope you update how you're doing. I have three friends who did weight loss surgery and it's not an easy surgery or recovery. The stress and trauma of surgery could make the fibro worse. I've had quite a lot of joint reconstructions in the past 20 years because of arthritis and ehlers-danlos and my fibro always go worse after surgery. <BR/><BR/>I understand what you're saying about the weight but honestly I'd try other solutions first. A good nutritionist who will coach you on a daily basis works wonders. I put on 40 pounds after taking prednisone off and on for two years. Finally I went the nutritionist route and for the past three months have lost about a pound a week. One pound a week doesn't sound like much but two things to remember here. One is that it's doable. The second thing is that it's 52 pounds in a year. That's what I need to lose. And I'm 15 down since I started three months ago. I gained a bit over the holidays but I've lost it since. <BR/><BR/>Get several opinions before doing the surgery. Talk to at least two rheumatologists and two surgeons who do the surgery. If they don't know about fibro, then find others who do. <BR/><BR/>Good luck to you. Please keep blogging so we know how you're doing. Visit my blog sometime if you get a chance. <BR/>Prof SAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9152579134032614306.post-64725625886174942172009-01-12T08:37:00.000-09:002009-01-12T08:37:00.000-09:00Most definately Kathy! My email is hobbz4@yahoo.c...Most definately Kathy! My email is hobbz4@yahoo.comhobbzhttps://www.blogger.com/profile/01329630388338314898noreply@blogger.comtag:blogger.com,1999:blog-9152579134032614306.post-45097173770930953232009-01-06T23:52:00.000-09:002009-01-06T23:52:00.000-09:00Hi,I think you might want to talk to me. I am a Nu...Hi,<BR/>I think you might want to talk to me. I am a Nurse, I also live in Anchorage and used to have the Anchorage CFS and Fibro Support group here in town.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9152579134032614306.post-27654195706907902432008-12-30T15:21:00.000-09:002008-12-30T15:21:00.000-09:00Trust your instincts, not their results. Equipmen...Trust your instincts, not their results. Equipment can malfunction, records can get mixed up. If you have doubts you have every right to get a second opinion. Wishing you well :)Jasminehttps://www.blogger.com/profile/14707087474225105806noreply@blogger.com