tag:blogger.com,1999:blog-9152579134032614306.post894897484693503970..comments2023-10-03T04:42:37.883-08:00Comments on Fibromyalgia and the Tiger within: I'm just not sure....hobbzhttp://www.blogger.com/profile/01329630388338314898noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-9152579134032614306.post-83046086007835848862012-03-12T03:33:44.530-08:002012-03-12T03:33:44.530-08:00It won't succeed as a matter of fact, that'...It won't succeed as a matter of fact, that's what I believe.<br /><a href="http://malestab.com" rel="nofollow">Viagra</a> | <a href="http://manstabau.com" rel="nofollow">buy viagra</a> | <a href="http://malestab.com" rel="nofollow">viagra Australia</a>Samsonnoreply@blogger.comtag:blogger.com,1999:blog-9152579134032614306.post-17505038077129647832009-10-16T18:08:08.627-08:002009-10-16T18:08:08.627-08:00Anonymous, I know how you feel. I have a feeling I...Anonymous, I know how you feel. I have a feeling I will be losing my job soon. I cant sit or stand for longer then 15-20 minutes... what job am I going to find that doesnt require this? I am in constant pain, there has been no relief at all in 2 weeks and my left shoulder even seems to be getting worse. I'm the only one bringing in money in the household so to loose even the part time Im doing now would be real bad.brenda09https://www.blogger.com/profile/11330604299038128342noreply@blogger.comtag:blogger.com,1999:blog-9152579134032614306.post-57396620309187922132009-10-16T18:03:37.378-08:002009-10-16T18:03:37.378-08:00wow, I found someone to talk to... I was diagnose...wow, I found someone to talk to... I was diagnosed 2 weeks ago with FMS although I have been in pain in certain places for at least 10 years it is now full blown. I can hardly work, I am part time right now and it's so so hard to do that. I dont know what to do. My family is afraid of me, walking on egg shells as they dont know what my attitude is going to be like. My body is losing this battle. I dont know what to do.brenda09https://www.blogger.com/profile/11330604299038128342noreply@blogger.comtag:blogger.com,1999:blog-9152579134032614306.post-20611512598341930392009-09-17T06:25:38.663-08:002009-09-17T06:25:38.663-08:00The biggest issue that ive had with fibro is worki...The biggest issue that ive had with fibro is working, Ive had so many jobs and lose them after mear days because of fibro attacks. I sit here this morning with panic attacks because I have to be at work at 10am to a new job, this will be day 4. I panic because I woke up not knowing what end to put over the can first. I feel so helpless and angry that I am a burden to my b/f. We have only been together for a year now, he was my first b/f in jr. high, my soul mate, but how dare I burden him with this? the fact that I can not work a conventional job and have NO clue how to bring money in without one. He asked me this morning if there was anything that he could bring me that would make me feel better, and the only thing I could think of was a loaded shot gun, cause I cant take anymore of this. The stress of being short on cash prompts me to find different work because I was missing to many days, puts me into a fibro attack,which stresses me out more, which in turn makes me sicker.I know it sounds like im just a big fat cry baby,, (well this morning I am) but I really do feel totally hopeless and helpless,Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9152579134032614306.post-3545702335789812392009-03-03T16:53:00.000-09:002009-03-03T16:53:00.000-09:00After 30 years with my partner who has suffered ma...After 30 years with my partner who has suffered many diseases, to feel her pain hurts the most, any anger she lets out is fine with me. Pain needs SOME way out and heck yes she will spit out ugly stuff sometimes, and she hates that like you do, but don't be hard on yourself---we understand and love you.Diane J Standifordhttps://www.blogger.com/profile/11862850657925658079noreply@blogger.comtag:blogger.com,1999:blog-9152579134032614306.post-29680119675592849722009-02-28T12:25:00.000-09:002009-02-28T12:25:00.000-09:00Thanks Jeanne, I really appreciate what you had to...Thanks Jeanne, I really appreciate what you had to say, and I added your blog to my list of blogs/sites. So far there are not any Fibro specific support grps in Anchorage where I live, but it's something I'm hoping to work towards starting....Everything you had to say was reassuring that we are all on this rollercoaster together and our feelings are normal and will pass with work and time.<BR/>thanks and welcomehobbzhttps://www.blogger.com/profile/01329630388338314898noreply@blogger.comtag:blogger.com,1999:blog-9152579134032614306.post-50857951348932769092009-02-28T03:15:00.000-09:002009-02-28T03:15:00.000-09:00Hobbz,I've been chronically ill since age 13 and I...Hobbz,<BR/><BR/>I've been chronically ill since age 13 and I'm 40 now. One of the numerous conditions I have is fibromyalgia. As I sit here right now, my entire body hurts. As in every molecule and cell of my body is shouting at me.<BR/><BR/>I've been married for for 10.5 years and we have a 8 year old daughter. I know the guilty, crummy, left-out feelings that come with missing out on activities the body just can't handle.<BR/><BR/>The first chronic illness I was diagnosed with (in 1992) was endometriosis. I had suffered 10 years undiagnosed before that. So I have been chronically ill for 27 of my 40 years.<BR/><BR/>I mention the endo because it's how I got hooked up with a support group. In my city (not even that big of a city) there is a fibro support group. Maybe there's one near you. I mention this because talking with others who "get it" REALLY helps.<BR/><BR/>Anyway, you can't help being sick and you have nothing to feel guilty for. Easier said than done, I know. Seriously, though, you're going to have to "let yourself off the hook".<BR/><BR/>I miss out on activities with my daughter and it kills me. In an odd way, I think living with me has taught her compassion, patience, and empathy skills far beyond her years.<BR/><BR/>As far as your husband's concerned, it sounds like his reaction to things is very normal too.<BR/><BR/>I don't normally include links in blog comments but I thought that in this case I'd list just this one... because I think you might like it. <BR/><BR/>The link is a blog post I did with video of Michael J. Fox talking about "whether he would go back to his life before Parkinson's. (Be sure to read the blog comments back to this post too).<BR/><BR/>http://endendoat.blogspot.com/2009/02/michael-j-foxs-message-of-hope-captures.html<BR/><BR/>I think his comments about "going back" apply to just about every chronic illness out there.<BR/><BR/>After 17 years in support groups, I can honestly tell you that the feelings you've described are very common and normal for the situation you're in.<BR/><BR/>I have fibro stuff on my blog. If you search for fibro in the little search box in the top left corner of my blog, you should get a number of posts that pop up. Since I have so many illnesses, I sometimes have trouble with how to divide my writing time.<BR/><BR/>Also, I may have missed it but I don't think I saw it in your blogroll... There is a blog called "Fighting Fatigue" that I'm sure you'd like. There is a wealth of fibro info there.<BR/><BR/>Hang in there!! :)<BR/><BR/>JeanneJeannehttps://www.blogger.com/profile/11454649048120118507noreply@blogger.comtag:blogger.com,1999:blog-9152579134032614306.post-57599197789604127972009-02-24T16:56:00.000-09:002009-02-24T16:56:00.000-09:00All 3 of you have such great insight! It's funny ...All 3 of you have such great insight! It's funny how you can be thinking one thing about having a chronic illness and you visit someone's blog and it's exactly what goes through your head. It makes the world of pain and disease a little more personal and definately not so lonely. I cherish very much every comment I get. Thanks for the support and keep trucking along.<BR/>Together WE CAN MAKE A DIFFERENCE IN EACH OTHERS LIVES :)hobbzhttps://www.blogger.com/profile/01329630388338314898noreply@blogger.comtag:blogger.com,1999:blog-9152579134032614306.post-16902760202025324732009-02-22T11:11:00.000-09:002009-02-22T11:11:00.000-09:00Thank you for sharing this dilemma with such artic...Thank you for sharing this dilemma with such articulateness and honesty. I blog about couples and illness and have heard many partners discuss the issues you raise. There's clearly no right answer - but to stay in there and continue the communication with your sweetie is the right road.<BR/><BR/>Here's one thought - perhaps his tolerance of your moodiness when you're suffering is his gift to you. Well partners often feel helpless. This is something he can do for you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9152579134032614306.post-67103904353222373632009-02-21T12:18:00.000-09:002009-02-21T12:18:00.000-09:00Wow! Are you in my head?! Your post sounds like t...Wow! Are you in my head?! Your post sounds like the continous battle that goes on at my house. I don't feel well so I am not as forgiving with the kids and at times, I am just plain mean. Yes, I said it and admitted it. This is not something I am proud of but it is what happens at times. My best friend helps out when times are really rough and I need a buffer between me and the kids. <BR/><BR/>It is a battle everyday to keep off the pity pot but my best friend and I made a deal that you can be on it from time-to-time but there is a 24hour limit. :-) It may sound silly but it works. <BR/><BR/>What a wonderful thing to have your soul mate. Just remember to work on the relationship and don't allow your diseases to guide you but your heart. <BR/><BR/>Thanks for posting on my blog. Your comments were very uplifting.Michellehttps://www.blogger.com/profile/08122715099229920359noreply@blogger.comtag:blogger.com,1999:blog-9152579134032614306.post-32151367277835313882009-02-15T06:05:00.000-09:002009-02-15T06:05:00.000-09:00It's incredibly difficult to maintain a balance of...It's incredibly difficult to maintain a balance of what you need for yourself and what you need to give to your family. But you have to give up the guilt -- it's not like you're doing this on purpose or you can change anything. You're doing a good thing by talking about those feelings with your husband. You both can understand how the other feels and that alone can help maintain the balance. <BR/><BR/>Those of us who suffer from chronic illness carry around a lot of guilt because we know our illnesses affect others, too. But somehow we have to find a way to let it go. Awareness, understanding, and acceptance help a lot. <BR/><BR/>Glad to see you back again!Anonymousnoreply@blogger.com