Saturday, January 15, 2011

whew made it thru the last couple of months...

Once again time has sped by at break-neck speed...but the last 2 months have been really crazy and sobering for me. In early December we travelled to San Diego for 10 days and had an amazing time...it was great to be in semi-warm weather again! As soon as I got back I started work, and that was a total disaster. The first week I worked Wed-Fri, and thought I was going to die of exhaustion, from the fibromyalgia and lack of sleep with an 8 month old, but I made it through. Went to work the following Monday and that night came down with the flu/cold from hell! I was sick as a dog for about 9 days. I know that it was a killer bug, but I also know that it was compounded by the fact that I was exhausted from working. During my sick time off of work, it became abundantly clear that I just can't hack working in a conventional job anymore. While I knew this when I originally left the position, I kind of forgot, because I was feeling relatively good, being at home with the baby...and I was only going back for a limited amount of time. Who can't handle a couple months of work...right? Well apparently I can't...and I fricking hate hate hate hate it. It makes me feel so flipping useless, i don't even know how to express it. I know that I'm doing a great job at home and with the kids, but i hate the thought that my body won't let me work if I want to. The lack of control is quite infuriating.
I keep trying to tell myself that there are lots of folks a lot worse off than I, and that for now I really am enjoying being at home with Emma...but there is still that lingering voice that hints that I'm a failure and "less than" everyone else.
I will get over it, and I will accept the fact as it is...but to be honest it just plain sucks ass! I'm an over achiever by nature, and fms certainly has put me in my place. I'm checking into some Internet stuff to make some extra cash...and I've agreed to work 3 hours a day from home, until my boss can find a replacement for me...only because I felt guilty as hell bailing on them like I did.
This new reality sucks...it's been almost 6 yrs since I was diagnosed and 8 months since I stopped working and I'm still struggling with how this disease takes away from my life. argh. As I'm sure you can tell, I keep trying to tell myself positives...but to be honest right now I think they are a load of crap and I just don't believe them...so at this point I think time is the answer. I need to give myself time to accept what has happened...accept my reality...and realize that I really do enjoy my life as it is today...I just hate this stupid disease. I'm tired of hurting, not sleeping, not being able to handle sound, smells etc...and most of all and I know this sounds weird to folks who don't have a chronic condition, but a big part of me wishes this disease wasn't so invisible so that others could see it and understand at least on some level what I'm dealing with.... we will see what time does for the ego/brain lol

cheers...hobbz

2 comments:

Sherlock said...

Glad to hear from you again! I can't believe the baby is already 8 months old! I'm glad you're able to enjoy this time with her. I work at home online and that has been a lifesaver for me. It's great that your job can be done from home -- see if you can't make that a permanent situation? You can work but be at home -- setting your own schedule around being with children and working around pain and exhaustion makes all the difference in the world! Good luck! I enjoy your updates!

Bertrand said...

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