I have attempted a post several times in the last few weeks...but every time I try it just doesn't seem to flow/work.
My fibro has been quite out of control, but as of Thursday I think I'm getting back on track. I've been having a really hard time advocating for myself with my doc...partly because I've been so down, and depressed about my situation. The pain has been non-stop and at least a 7 on the pain scale pretty much daily for a couple of months now and I think it just wore me down...to the point I was so overwhelmed that even advocating for myself seemed impossible.
BUT, on Thursday I went to the doc for the 4th time in about 6 weeks and just put everything out there. We had tried doubling my savella a few weeks back and that went horribly! I was so nauseous 24/7 I couldn't do anything...plus it created just mind numbing anxiety. Every time I laid down to sleep I felt like I was suffocating and had to sit up....NOT a good thing. I took myself back to my regular dose after toughing it out 17 days...I just couldn't take it.
SO, now I'm taking my regular dose of savella, with Lyrica added in twice a day, and I'm no longer taking tramodol (which hasn't helped my pain for some time now), and I'm on vicodin. It's 3 days in and my pain seems better under control...not where I ultimately want it yet, but it's a start! I'm feeling a little loopy on the new meds, but I'm hoping that will pass as well.
Joined Twitter today...not sure why, but I thought I'd see what it's all about...so look me up or send me you twitter names if you are on too. My name is FibroTiger
Hope you are having a pain-free day!