Saturday, October 6, 2007

Going with the flow

Another week down at work, and we are now down to 2 of us instead of 4. Let me tell you this had me stressing a bit...but all worked out. I am ever reminded how important sleep is to my health and keeping FMS as bay. I have always needed a good 8-9 hours of sleep a night....or my world just isn't right. Since FMS has entered my life, I really have to keep my sleep as a priority.

Last night for example I went to bed around 11pm....I got up around 8:30 this morning...took about a 30 min nap around 11am and then had a BIG nap this's almost 9pm here and I could easily go to bed and sleep all night. When I was healthy, I would one: not been able to sleep that much, and two: if I did manage to sleep like that I would have felt horrible for over sleeping....but not now....since I don't get enough of the "regenerative" body is in a constant state of exhoustion. I can sleep 8 hours and wake up more exhausted than when I went to bed. This is a VERY common symptom in FMS and is one of the big diagnostic symptoms.

It's weird how you get used to it though. I can't even tell you how many nights I've sat up with a book, on my puter, watching tv, even listening to Bret's just one of the constant daily reminders that I have FMS and this disease is not forgiving....if you don't take care of your suffer, plain and simple.

On good days like today when I'm recharging, it doesn't seem so bad, but if this happened on a Wednesday...I'd be done for. Obviously napping all day isn't an option when you have to work and when it happens in the middle of the week it's really hard to catch up. That's one of the wonderful things about my job is that I get off at 12:30 most days. It's just when we're shorthanded like right now, that I work a full 8 hours....
I only work 2 hours less a week than I did in the NICU but because of the hours, and my ability to "recharge" during the week that this position makes the difference. In that respect fate really dealt me a break by allowing me to find this position.....if only it paid

Well I'm off to play some games....hope all my fellow fibromites are doing well....and a big thank you to those non-FMS'ers that are proactively reading this blog...I hope that it gives some insight....



aplseed said...

Yes,It has been thatway with me for years now.

I have interviews and soon may be trying jobs that are 12 hr. shifts. I still do not know how I will do even with the tens to help me,but it must be done. Today I will interview for the posibility of a saloried Q nurse position,with the reality of a nnight nurse poition 12 hrs 3 days a week being a possibility if I don't get the QA job. I am praying for the QA job,but in reality if I can manage 12 hrs,it would be real nice to have 4 days a week to relax.

hobbz said...

Actually 12's aren't too bad if you have 4 days off to recover...for me it seems the most important thing is not necessarily the shift length but the amt of time I have off to recooperate...I'll keep my fingers crossed for you getting the QA job